I believe the last we left off on our journey, we were waiting a date for Rhett's MRI procedure.. That happened, two Friday's ago. In a series of the longest two days we traveled an hour each way both Thursday and Friday of that week to meet with the doctors, anesthesiologists and hospital staff. MRI's for babies and toddlers are difficult procedures, the child must be sedated then put to sleep and then the MRI can begin.. In total, Rhett had 4 MRI's. The experience was as wonderful as the experience could be, the staff was wonderful and treated us as family - something we desperately needed. The weekend happened and this past Tuesday we received a call from the Neurologist with the results...
Rhett has some abnormalities with the white matter in his brain. It was a very lengthy conversation, much of which neither of us have understood and we have refrained from Dr Google due to the worst possible scenario being the first thing we have read. The light in all of this, Rhett's Neurologist is on staff at UMC in Jackson, MS with access to a team of colleagues with much experience in Pediatrics. We should receive a call on Monday (leap day) with a plan of action, what comes next, and what we should do to make life work better for all of us. We had an emotional moment today, thankfully we were prayed over by new friends at a church we began attending recently - and while I don't push religion on anyone, I am very thankful that we were exactly where God wanted us to be today.. And I hope that everyone who has prayed for our family will continue to do so.
The following day we visited our Pediatrician for Rhett's regularly scheduled check in and his past due 6 month shots (no we intentionally didn't miss them, he just wasn't in the best of health to receive them until now). This trip included the news that Rhett is being referred to a ENT for tubes in both ears. We make the journey to see him tomorrow as well.
The best news of all with Rhett, he has begun sitting for periods at a time without support! While we can not walk away from him yet, it is the progress we have been needing to see to stay motivated. He also broke his first tooth today! And last night, he sat in a regular restaurant high chair unsupported! Much to be excited about. Physical therapy is definitely working with Rhett, he isn't thrilled during the actual therapy but is relatively happy with himself and his new abilities.